•11th international conference on hydrocephalus and spina bifida 23 to 26 September 1999. In: Caliper. Spina Bifida Association of Western Australia Issue 4; 1999.
•Anderson P. Operation happiness. Current. Journal of the spina bifida and Hydrocephalus Association of Ontario. Summer 1997
•Anderson PD. Bladder augmentation: the RCH experience. Royal Children’s Hospital: Melbourne. 2000
•Association for Spina Bifida and Hydrocephalus. Hydrocephalus: a guide to education. Association for Spina Bifida and Hydrocephalus: Peterborough 1991.
•Batshaw M L (ed). Children with disabilities (4th edn). Maclennan & Petty: Sydney 1997.
•Bentley JR, Ferrini RL, Hill LL. Folic acid fortification of grain products in the US to prevent neural tube defects. American College of Preventive Medicine Public Policy Statement. Am J Prev Med 1999;16:264–7
•Bolt J. Meeting life’s changes. Sexuality and reproduction in males with spina bifida. Royal Children’s Hospital: Melbourne. 2001
•Botto LD, Moore CA, Khoury et al. Neural tube defects. N Engl. J Med 1999; 341:1509–19
•Brown PG, Shaver EG. Myolipoma in a tethered cord. J Neurosurg 2000; 92:214–6
•Cameron B M. Easy access Australia (2nd edn). Easy Access Australia: Melbourne 2000.
•Caprick S. Yes you can: A kit for teens. The Spina Bifida Association of Canada.
•Cartwright C. Primary tethered cord syndrome: diagnosis and treatment of an insidious defect. Journal of Neurosci Nurs 2000; 32:210–5
•Continence Foundation of Australia. Victorian Branch Inc. One step at a time. Toilet training a child with intellectual disability. Continence Foundation of Australia. Victorian Branch Inc: Melbourne 2000
•Cornett J, Verpoorten C, Lagae L, Plets C, Van Calenbergh F, Casaer P. Closed spinal dysraphism: a review of diagnosis and treatment in infancy. Euro J Paediatr Neurol 1998;2(4):179–85.
•Department of Health and Aged Care. Continence aids assistance scheme. Application Guidelines. Department of Health and Aged Care: Canberra 2001
•Donellan S. Urological management of the patient with spina bifida. Monash Medical Centre: Melbourne 2001
•Eire FE, Cives RV, Cago MC. Faecal incontinence in children with spina bifida: the best conservative treatment. Spinal Cord 1998; 36:774–6
•Ekmark E, Adams RC. The antegrade continence enema (ACE) surgical procedure: patient selection, outcomes, long term patients management. Eur J Pediatr Surg 2000; 10 (Suppl 1) 49–51
•Gleeson RM. Bowel continence for the child with a neurogenic bowel. Rehabil Nurs 1990; 15:319–20
•Hensle TW, Reiley EA, Chang T. The Malone antegrade continence enema procedure in the management of patients with spina bifida. J Am Coll Surg 1998; 186:669–74
•Hoeman P. Primary care for children with spina bifida. Nurse Pract 1987; 22:60–72
•Kang JK, Lee IW. Long term follow up of shunting therapy. Child Nerv Syst 1999; 15:711–17
•Leewun R, Notermans NC, Vandertop WP. Surgery in adults with tethered cord syndrome: outcome study and independent clinical review. J Neurosurg 2001; 94:205–9
•Leibold S, Cole P, Peterson J, Henry-Atkinson P (eds). Bowel continence and spina bifida. Spina Bifida Association of America; Washington DC 1995.
•Leibold S, Ekmark, Adams RC. Decision making for a successful bowel continence program. Eur J Pediatr Surg 2000:
10 (Suppl 1):26–30
•Locksmith GJ, Duff P. Preventing neural tube defects: the importance of periconceptional folic acid supplements. 1998; Obstet Gynecol 1998; 1027–34
•Lollar D J (ed). Preventing secondary conditions associated with spina bifida or cerebral palsy: Proceedings and recommendations of a symposium February 17–19 1994, Crystal City, Virginia. Spina Bifida Association of America: Washington DC 1994.
•Lutkenhoff M, Oppenheimer SG (eds). Spinabilities. A young person’s guide to spina bifida. Woodbine house: Bethesda 1997.
•McComb JG. Spinal and cranial neural tube defects. Semin Paediatr Neurol 1997; 4:156–66
•McLone DG. Care of the neonate with a myelomeningocoele. Neurosurg Clin N Am 1998; 9:111–20
•Melvin EG, George TM, Worley G et al. Genetic studies in neural tube defects. Pediatr Neurosurg 2000:2000; 32:1–9
•Menelaus MB. The evolution of orthopaedic management of myelodysplasia. J Paediatr Orthop. 1998; 18:421–2
•Meyer D J (ed). Views from other shoes: Growing up with a brother or sister with special needs. Woodbine House: Bethesda 1997.
•National Health and Medical Research Council. NH&MRC Revised statement on the relationship between dietary folic acid and neural tube defects such as spina bifida. National Health and Medical Research Council 1993
•Nolan T. Fitness training diary. Royal Children’s Hospital: Melbourne. 1996
•O’Connell, McGuire EJ. Assessing and Managing Urinary Incontinence in Primary Care. http://www.medscape.com
•Ponticelli A, Iacobelli BD, Silveri M et al. Colorectal dysfunction and faecal incontinence in children with spina bifida. Br J Urol 1998; 81 (suppl 3):117–9
•Proctor MR, Bauer SB, Scott RM. The effect of surgery for split spinal cord malformation on neurologic and urologic function. •Pediatr Neurosurg 2000; 32:13–9
•Rauen K (ed). Guidelines for spina bifida health care services throughout life. Spina Bifida Association of America: Washington DC 1995.
•Rodgers WB, From DM, Emans JB. Surgery of the spine in myeolodysplasia. Clin Orthop 1997; 338:19–35
•Royal Childrens Hospital. Clean intermittent catheterisation. Instruction sheet for females. Royal Childrens Hospital: Melbourne 2001
•Royal Childrens Hospital. Clean intermittent catheterisation. Instruction sheet for males. Royal Childrens Hospital: Melbourne 2001
•Royal Childrens Hospital. Augmentation cystoplasty. Patient pamphlet. 2001
•Savage JG, Yohannes P. Laparoscopic antegrade continence enema in situ appendix procedure for refractory constipation and overflow fecal incontinence in children with spina bifida. J Urol 164:1084–87
•Savage JG, Yohannes P. Laparoscopic antegrade continence enema in situ appendix procedure for refractory constipation and overflow fecal incontinence in children with spina bifida. J Urol 2000; 14:1084–87
•Sandler A. Living with spina bifida. University of North Carolina Press: Chapel Hill 1997.
•Shepherd K, Hickstern R, Shepherd R. Neurogenic faecal incontinence in children with spina bifida. Aust Paediat J 1983; 19:97–9
•Silveri M, Capitanucci MI, Mosiella G et al. Endoscopic treatment for urinary incontinence in children with a congenital neuropathic bladder. Br J Urol 1998; 82:694–7
•Silveri M, Capitanucci ML, Capozza et al. Occult spinal dysraphism: neurogenic voiding dysfunction and long term urologic follow up. Pediatr Surg Int. 1997; 12:148–50
•Sloan S L. Sexuality and the person with spina bifida. Spina Bifida Association of America: Washington DC 1995.
•Spina Bifida Group of NSW. Spina bifida: a shared perspective (spinasaurus). Spina bifida Group of NSW: Parramatta 1998.
•Spina Bifida Association of Victoria. Educating the student with spina bifida. Spina Bifida Association of Victoria: Melbourne.
•Spina Bifida Association of Victoria. Spina bifida and
hydrocephalus explained. Spina Bifida Association of Victoria: Melbourne.
•Stewart B. Sex for young people with spina bifida and cerebral palsy. Association for Spina Bifida and Hydrocephalus, Tavistock Square. London, 1983
•Sugarman JD, Malone PS, Terry TR et al. Transversely tubularised ileal segments for the Mitrofanoff or Malone antegrade colonic enema procedures: the Monti principle. Br J Urol 1998: 251–6
•Sutherland RW, Gonzales ET. Current management of the infant with myelomeningocoele. Curr Opin Urol 9:527–531
•Van Leewun R, Notermans NC, Vandertop WP. Surgery in adults with tethered cord syndrome: outcome study with independent clinical review. J Neurosurg (Spine 2) 2001; 94:205–9
•Webb HW, Baraza MA, Stevens PS et al Bowel Dysfunction in spina bifida — an American experience with the ACE procedure. Eur J Pediatr Surg 1998; 8 (Suppl 1):37–8
•Wells J, Jamieson, Harrison J. Anita and Sam can’t poo. Children’s colouring/activity book. Victorian Children’s Ostomy Association: Melbourne 1999
•Williams R. Service provision to the spina bifida community in the United States of America and Canada. Research Report of a program of visits and consultations funded by the Churchill Memorial Trust. 1966. Vol 1 and 2
•Willis RA. Faecal incontinence — Willis home bowel washout programme. Kinderchir 1989; 14(suppl 1):46–7
•Yamada S, Lonser RR. Adult tethered cord syndrome. J Spinal Disord 2000; 13:319–23